Saturday, December 24, 2011

Our Little Miracle

Hello everyone it's late right now and Christmas Eve so I'm not going to go into too much detail on Baby Maximus tonight. He's here! He was born on December 22, 2011 at 12:35am and weighed 7lbs 4oz and was 20 inches long. He came into the world with a quick decision of C-Section. I will go more into the birth story later next week when I get Christmas over with. Right now I just want to say that he is a special miracle in our lives. He was born with a few complications that we did not know about until he arrived and he and his daddy went straight to the NICU. He has not been 100% diagnosed with anything yet but they are pretty sure he has whats called Glotz Syndrome. (don't google it, because it will tell you more than anyone really knows about the syndrome) Maximus is a fighter and has improved so much. A few things thats going on with him, on his right hand his pointer finger is webbed with his middle finger, on his right foot he is missing a toe and his big toe it kind of a clef foot or what I call his monkey foot (and it's cute!), his spine is a little curved not too bad though, and then he has some skin lesions or sores we are not sure exactly what they are or what they need to do about them. Most of them are healing and going away and his skin looks really well everyday. He just has one on the top of his head that is concerning but they think it will go away. He is really doing well! We love him so much! He has had a lot of support and love and prayers. Here are a few pics of our little miracle. Today Santa came to see him and that was quite the adventure and it wore him completely out! We even got to dress him in a little outfit for the first time to wear with Santa. We are not sure when he will be coming home because a lot of specialists and a lot of Dr's want to study him because he has such a rare thing going on. I will post more on whats been happening and his improvement later here are some pics. 

One of my favorite pics


Just chillin'


Right before seeing Santa


Merry Christmas! 


Maximus with Mommy


Maximus with Daddy

Maximus with Grandma



Maximus with Grandpa




First family pic


Maximus' nerdy Daddy!


Thank you to all those who are supporting us in this process! We love and appreciate all of your thoughts, visits, prayers and love. We hope to bring Maximus home soon so you can all meet the special little guy!

1 comment:

T.J. and Jennifer Miner said...

He is so cute! I can't wait to meet your little fighter! What an amazing miracle!