Maximus's Surgery

Max is going in tomorrow morning at 6 am for his cath procedure. Yes I am still awake. I'm a mom and I'm worried and scared. I will try my hardest to keep updating throughout the day tomorrow on what's going on through here and Facebook for those of you that want them. Thank you to those of you praying for Maximus and us. We truly appreciate each and everyone of you. Tony gave both me and Maximus beautiful blessings tonight to help with the day tomorrow. I love him so much for having the priesthood and being able to use it. I hope we get some clearer answers to this pulmonary hypertension and that it will be fixable! Maximus has been a champion through everything he's been through and I don't doubt him being a champ tomorrow! I love him so much! He's my hero!

A Late Night Post

Hello everyone (whoever actually reads this blog). Just have a lot in my mind do I thought I'd write a post. Not that anyone will care to read about all that's on my mind but maybe if I get it out there I can find some motivation to remove some of the stress that's crowding my brain!

1. Exercise. I seriously need like a personal trainer that doesn't cost money. Any volunteers? I am so sick of being fat. But I'm so un motivated it's not even funny. And brownies and ice cream that I just ate at 11pm doesn't help at all I know. I've been keeping the weight I've lost off but I'm not losing any more. And I've got 40 lbs to go. My husband tries to help me bless his heart, tries to motivate me but it's hard even with his helpful words of encouragement. So I'm depressed about it. I want to be skinny again! I guess I just have to want it bad enough. Any advice?

2. My 8.5 month old is going to be having 2 surgeries in less than a month and I'm extremely emotional about it. I've cried a number of times just thinking about it but I do it when no one can see me because I'm trying to be brave. But seriously I'm so afraid for him. I'm afraid of complications, I'm afraid of the unknown. I'm afraid of what the Drs. will say or find. I get the papers in the mail explaining protocol for the day of surgery and I cry because it sounds like so much for a little guy. I wish I could do it for him. I wish I could be more brave. I feel like such a baby sometimes like I'm making a bigger deal of it than it is and maybe I am but I'm his mom and I just hate knowing what pain he will be in.

3. Finances. I'm not going to go into it because it's too personal. And really were doing pretty dang good considering! But there's a lot to think about. We've been so blessed with help in this department and are forever grateful for those who've helped and continue to help! I cant express the gratitude we have for the money and other things we've received. And in no way is this a cry for help because we are doing great but finances are always heavily on both our minds.

4. The 500 million (ok that might be an exaggeration just a little) things/projects I want to do that I can't do because I feel like I have no time or money to do them! Anybody else have this problem? Lol. Just a few of the things I want done are: my kitchen table that's been sitting in the garage waiting for me to finish along with the chairs, my craft room, crafts galore! That need to be finished, I want to decorate my bathroom and finish with my bedroom, re paint my front room, paint and finish decorating my laundry room, re organize my storage room, find knobs for my doors! (none of my doors in my house have knobs, mostly because it's just the two of us and we want to finish the basement first). My list is at least another page long but I won't bore you any further.

Anyways I don't know why I felt like I needed to get all that out. But maybe it will make me feel better. I also don't mean to make it sound like I'm depressed or need help at all cuz I'm not! I actually am pretty happy just wish I was one of those super moms who have four kids and seem to be interior designers, professional cooks, and organizers ect. But I'm not and I don't plan to be just want to figure out how to keep motivated and do things that I want or need to get done on top of taking care of my husbands needs and Maximus.

So to finish how do y'all do it? Keep motivated? Get things done? I want to hear your ideas! Please!

What we've been up to!

Oh boy, remember how I said I would be better at blog posts? I lied. Forgive me for the long post. PS my pictures are in random order because I don't want to take the time to rearrange them. Maximus is sleeping and if he wakes up before this is finished this post is history! Anyways, real quick update...

1. Maximus got his helmet as you can see in some of the photo's. It's been a difficult situation. We know it's working, however because he has such sensitive skin it's been causing sores and bumps to form. So today I took him in (for like the 10th time since we got the helmet a month ago) and we got a rescan for a new helmet with softer interior for his sensitive little head! He looks so dang cute in it! We will get the NEW helmet in a week and start over.... Ugh. Oh well at least we know its shaping his head. When we told the Dr he had sensitive skin he said "No worries, I've dealt with sensitive skin before!" When I went back for the rescan he said, "I really have dealt with sensitive skin before, but this is definitely a first!" 

2. Maximus is 8 months old already. WOW! Time has flown. I cannot believe it. He now sits up on his own, rolls over from tummy to back, only takes one bottle a day in the morning and the rest of his meals consist of green smoothies and fruit and veggies packed with butter! He is starting to get a little more brave when he is sitting he wants to get things out of his reach but can't figure out how to move to do it. I'm sure it won't be long! He is saying Mama a lot now even though he doesn't know what it means. I'm on to teaching him Dada! He still loves his baths and it's even more fun now that he can sit up and play. He is a little explorer! Loves new environments, new people, and new toys. He is still on oxygen at night. Has to cuddle with something to go to sleep. And is finally reaching out at least to me when he wants to be picked up! 

3. On the 21st of this month Maximus will be having a procedure done up at primary's where they go through the carotid artery in his leg up to his heart to measure the pressures it's sending to his lungs and to see about finding a cause for his Pulmonary Hypertension, while they are in there they will administer a few different medications to see which would be best to put him on for the hypertension. I am really really really really really nervous about this. But maybe it's because I'm his mom? They will be putting him under for this and the surgery is 3-4 hours long. It is same day surgery (if there are no complications) so that makes me feel better! But I am just so worried. I just hate the fact that he has to have it done and that he has to be put under. I also don't like that they will be in his heart and a main artery. I will have Tony and someone else give him a blessing and I'll probably get one too. 

4. I am going to be leaving my little munchkin for the first time to go to Vegas with two friends for a Paparazzi Jewelry convention. I'm a little nervous about leaving him but I know he will be with his Daddy and Grandma's and be in good hands. But I'm leaving 2 days after his surgery! I'm hoping he will be recovered by then! 

Anyway's thats a brief update for now. Here are some recent pictures!

Sleeping in his helmet holding his binki

Maximus & Marshall hanging out on Ruka the dog

This is the bump and sore that forms from his helmet

I was feeling very ambitious today and spent 2 hours making and stocking up on baby food!

Sleeping with monkey

Hanging with Daddy

We sat down for dinner one night and heard this weird sound! After searching for the sound we discovered it was a bird stuck in our fireplace! You can barely see it!

My cute boy!

Sleeping holding his toes!

I was at the Dr one day and he decided to have a blowout! And stupid me forgot to restock the diaper bag with diapers. So I made one out of his changing pad I had in there! 

The Demolition Derby!

Sucking on his binki weird!

A video of him rolling over!